Tuesday, April 15, 2008

Rally for Rett Fundraiser on Saturday

Rally for Rett in Worcester: Fundraiser to benefit Children's Hospital Boston's Rett Syndrome Program

When: Saturday April 19th, 6:30 – 9:30 pm
Where: Beechwood Hotel, Worcester
What: Silent Auction, Children's Auction, Hors d'oeuvres & Great Swing Music by Red Riders with swing dance demonstration
Why: Near Christmas of 2005, at age 18 months, a girl named Lillian was diagnosed with a debilitating neurological disorder called Rett Syndrome. There were no experts or specialist available locally … until now. Families on the East Coast of the US & Canada needed a clinic to help manage the day to day medical and developmental difficulties that girls with RS face. That need was met by the new Rett Syndrome Project at Children's Hospital Boston, which began operation September of 2006. The project targets the treatment and support of the sufferers of Rett Syndrome and their families as well as the advancement of clinical, medical and scientific research with the long-range goals of symptom remediation and cure for this most debilitating disease Please join the Courtney family for cocktails & fabulous hors d'oeuvres, live swing music, dancers and an inspired silent auction as we raise money to directly support the Rett Syndrome Project.
Cost: $50 per person
Contact for Tickets or Donations: Leslie or Pat Courtney 508-757-9952 or patandleslie@charter.net

About Rett Syndrome: Rett Syndrome (RTT) is a debilitating neurological disorder diagnosed almost exclusively in females. Children with RTT appear to develop normally until 6 to 18 months of age when they enter a period of regression, typically losing speech and motor skills. Most develop repetitive hand movements, irregular breathing patterns, seizures, gastro-intestinal problems and extreme motor control problems. RTT leaves its victims profoundly disabled, requiring maximum assistance with every aspect of daily living. There is no cure. http://www.rettsyndrome.org/ and for event info: http://rettsyndromemass.org/events.aspx

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